sandra-fucile

Developing compassionate virtually guided infant development abilities (VIDA) monitoring technology with children who were born preterm and their families

Sandra Fucile

PhD, OT Reg (Ont)

Assistant Professor, School of Rehabilitation Therapy, Department of Pediatrics, Queen’s University

Award: 2024 Compassion and Artificial Intelligence Grant

Themes:
  • Children
  • Compassionate Health-service
  • Monitoring Technologies

Infants who are born early are at high-risk of sustaining developmental disabilities affecting their families’ quality of life. Neonatal follow-up is critical for the early identification of developmental delays to improve outcomes. Traditionally, neonatal follow-up is performed via in-person visits. A myriad of geographic and socioeconomic factors present barriers for numerous families to access the follow-up care their child requires. To meet this need, Sandra developed a virtually guided infant developmental abilities (VIDA) monitoring technology. While the VIDA plays an important role to detect developmental delays in the most vulnerable children, challenges exist in a compassionate approach for provider-patient use of the VIDA. In collaboration with families, her project aims to develop a framework to guide the compassionate use of the VIDA monitoring technology. The framework will provide a process map for personalizing the VIDA and lead the way for compassionate use of other monitoring technologies in this population.