Building Compassionate Digital Capacity to Manage Childhood Cancer Pain: Parent Co-Design of the PainCaRe app.

Assistant Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto

Almost all children with cancer will experience pain. This pain decreases quality of life for the child and their caregivers—and is a significant financial burden to families and health systems. App-based digital solutions are uniquely poised to offer real-time and accessible compassionate healthcare and family support and prevent or alleviate cancer pain in this group. Lindsay has begun developing a novel cancer pain management app for parents of young children with cancer. She is now embarking on an adaptive, multi-site and user-centered project with parents to compassionately co-design the new cancer Pain Caregiver Resource (PainCaRe) app.